Support / Online Communties
Although Moyamoya is a rare disease, you're not alone! There are numerous supportive communities available to help you. Scroll down to find out more!
01
The Moyamoya Foundation is a non-profit organization dedicated to raising awareness of Moyamoya disease, supporting research, and assisting patients and families with treatment costs. They can be contacted at (860) 604-0243 or execboard@moyamoya-foundation.org. Visit their Facebook page through the link above or find more information on their website: MoyaMoya Foundation
02
This Facebook group allows patients and family members to share experiences and support each other. It also serves as a forum for the Stanford team to provide accurate information about moyamoya disease, treatment options, and the latest research findings.
03
The World Moyamoya Alliance is a U.S.-based medical non-profit organization dedicated to educating the public about moyamoya disease, collaborating with specialists to reduce stroke risks and deaths, funding international research, and improving the lives of those affected by moyamoya. Above is the link to their Facebook page and the following is a link to their main website: World Moyamoya Alliance
04
This Facebook group serves as a place of discussion for families with children with Moyamoya Syndrome & disease.
